Thursday September 12, 2013
Five thousand new cases of ALS are diagnosed each year in the United States alone and it is likely that someone you know has been affected. And indeed, friends and families in South Burlington are all too familiar with ALS as just recently, Frank Petrosino lost his long battle with ALS. Jackie Heltz, a long time volunteer, noted “Sadly, Frank passed last week, but his family’s fight continues.”
ALS, commonly referred to as Lou Gehrig’s disease, can strike anyone at any time and claims a life every 90 minutes. ALS is a terminal, neurodegenerative disease which attacks cells in the brain and spinal cord leading to loss of motor function, paralysis, and eventually death within an average of two to five years post diagnosis. Today there is no known cause, cure, or effective treatment but with your help there is hope for tomorrow.
The 2013 Walk to Defeat ALS®, hosted by the ALS Association, Northern New England Chapter, invites all family, friends, caregivers, sponsors, and people with ALS to join the walk. The walk is held in the effort to spread awareness, raise funds for patient services and research, and offer support for those who have fought and are fighting the disease.
The 2.5 mile walk takes place on Sunday, September 22nd, rain or shine, at Dorset Park, located on the corner of Dorset and Swift Street. Registration begins at 10:30 and the walk kicks off at 11:30. Donated snacks, ice cream, and plenty of water will be provided for walkers to enjoy.
This year’s event will be hosted by returning emcee Tony Adams and also feature warm-ups led by the Burlington Boot Campers, live music, games, team photos, the Jim’s House information booth, tribute tent (to honor those with ALS and those lost to the disease), and much more!
Looking for more ways to get involved? Put your endurance to the test at the Spartan Race in Killington, Vermont. On Saturday, September 21st, competitors conquer an obstacle course like no other. Here, competitors will test their endurance and strength in the face of hills, barbed wire, 10 foot walls, and even fire, to raise money to conquer ALS. Visit web.alsa.org/spartanracers for further information. To register, volunteer for, or to sponsor the Walk to Defeat ALS® please contact Fundraising and Community Relations Director Amy Coyne at: 603-969-3004/ firstname.lastname@example.org, or local walk committee member Deb Wehrlin at: 802-862-0389 / email@example.com or visit www.walktodefeatals.org.